We have some very good news to share: After nine years of intensive advocacy efforts, nearly every baby born in this country now lives in a state that requires screening for most of the 29 serious but treatable disorders recommended by the American College of Medical Genetics.
This is a remarkable public health advance essentially eliminating state-by-state screening gaps. And it was made possible by people like you — the volunteers, donors and staff of the March of Dimes — working in tandem with our partners and state officials. The clear beneficiaries are babies and their families.
Recently, TIME Magazine, The New York Times, Los Angeles Times Health Blog, San Francisco Chronicle, Health Day, Health News Digest, MedPage Today, CNN Radio and several NBC-affiliate stations shared this story following the release of our Newborn Screening Report Card.
Newborn screening involves a simple blood test taken before the baby is discharged from the hospital and is done to detect certain rare disorders before any symptoms begin. If diagnosed early, these disorders can be successfully managed or treated to prevent death, disability or other severe consequences such as mental retardation.
If you or someone you know is expecting, I encourage you to learn more about newborn screening.
Even while we are celebrating, we are continuing to work hard on this issue. Please join us either by signing up as an eAdvocate to help secure federal funding for the Newborn Screening Saves Lives Act (Public Law 110-204) or by working with your March of Dimes Chapter on this topic.
Together we are touching—and improving — the lives of our nation’s babies and families.
Thank you,
Dr. Jennifer L. Howse
President
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